Wednesday, December 2, 2009

Trips to the doctor or lab over the last 6 months...

How many times have I been to the doctor, to a lab, or to a medical facility for a specialized procedure or test over the last 6 months you ask? Well, the answer is...

40!

That comes out to, what, once every 4 days? That sounds about right. To be honest, that feels like a conservative estimate. 

I found this out when I pulled up my claims summary for the last 6 months on my health insurance website. 

Just a funny/sad/interesting/startling/depressing/ fact. You're welcome!

1 comment:

Anonymous said...

I live in the Orlando area and have late stage Lyme as well. I am presently under the care of a wonderful LLMD whom I found by e-mailing a request to lymedoc@aol.com. I am so worried about you. Dr. Reifsnyder could not be more wrong about the prednisone being helpful. You will not get well and you may get worse as long as you continue to take this medication. Any worthy LLMD will tell you that it is totally CONTRAINDICATED in Lyme disease. I am currently on iv Ceftriaxone, Plaquenil (an anti-malarial drug which is effective against Borrelia in it's L form and also Babesia), and Tindamax (a powerful cyst buster like Flagyl). My doctor will be adding iv Arythromycin next week. I think that is for Mycoplasma, but I am not certain. She also has me on some other things like Acidophilus, Ursodiol (to help keep me from forming gallstones due to the other meds), Fluconazole once a week to prevent fungal infection due to all the antibiotics and Energy Multi-Plex.

I am also on my third HBOT treatment done right here in Winter Park, FL. People are traveling from out of state to receive treatment at this facility. Compared to other HBOT facilities across the nation it is relatively inexpensive. I have done some powerful herxing in that chamber. The doctor explained that Borrelia is a facultative anaerobe (hates oxygen) and that any Borrelia that are inside the red blood cells will try to flea from the oxygenated red blood cell into the plasma which contains an even higher amount of oxygen and hopefully antibiotics as well. In other words the spirochetes are jumping out of the frying pan into the fire. The oxygen is also perfused deep into the tissues. Alone, it is not a cure...but remarkably helpful.

There are organizations which financially help people with lyme disease. http://en.allexperts.com/q/Lyme-Disease-2911/2009/8/lyme-12.htm. It is so unfortunate that we live in a climate where insurance companies refuse to help Lyme patients get the help that they need.

There is a remarkably powerful documentary out now called "Under Our Skin". It chronicles the heart-wrenching, desperate and discouraging search for help experienced by Lyme patients. It also goes in to how doctors that are willing to give Lyme patients the treatment they need are under attack by insurance companies and they are in danger of losing there license because of non-compliance with the flawed guidelines of the CDC.

I feel for you and want you to get well. Please e-mail me at ginnywren@hotmail.com